All DSE

Quick links to our other sites.

Down Syndrome Research Forum 2025

Program · March 17-19

The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.

Day 1

2:20 PM - 2:30 PM (IST)

Welcome

Keynote

2:30 PM - 3:15 PM (IST)

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

View keynote

Speaker

Linda Gilmore

Paper

3:15 PM - 3:35 PM (IST)

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

View abstract

Lead Author

Chris Jarrold

3:35 PM - 3:50 PM (IST)

Break

Paper

3:50 PM - 4:10 PM (IST)

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

View abstract

Lead Author

Susanna Stokes

Paper

4:10 PM - 4:30 PM (IST)

Social Skills Acquisition in Children and Adolescents with Down Syndrome

View abstract

Lead Author

S. Onnivello

Paper

4:30 PM - 4:50 PM (IST)

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

View abstract

Lead Author

Susanna Stokes

Symposium

5:05 PM - 6:15 PM (IST)

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

View symposium

Organizer

Hana D’Souza

Paper

7:00 PM - 7:20 PM (IST)

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

View abstract

Lead Author

Tamar Rutter

Paper

7:20 PM - 7:40 PM (IST)

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

View abstract

Lead Author

Brian Skotko

Paper

7:40 PM - 8:00 PM (IST)

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

View abstract

Lead Author

Shann Kyle G. Gacho

Paper

8:15 PM - 9:00 PM (IST)

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

View abstract

Lead Author

Natasha Marrus

Paper

9:00 PM - 9:40 PM (IST)

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

View abstract

Lead Author

Frank Buckley

Paper

9:55 PM - 10:15 PM (IST)

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

View abstract

Lead Author

Jessica Mattingly

Paper

10:15 PM - 10:35 PM (IST)

Attention, working memory, and adaptive skills for adults with Down syndrome

View abstract

Lead Author

Kayla Kristensen

Paper

10:35 PM - 10:55 PM (IST)

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

View abstract

Lead Author

Elisa Rossi

Paper

11:10 PM - 11:30 PM (IST)

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

View abstract

Lead Author

Kaylie Burns

Paper

11:30 PM - 11:50 PM (IST)

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

View abstract

Lead Author

Jaclyn H. Ford

Paper

11:50 PM - 12:10 AM (IST)

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

View abstract

Lead Author

Anna Pyle

Day 2

2:50 PM - 3:00 PM (IST)

Welcome

Keynote

3:00 PM - 4:00 PM (IST)

The sibling subsystem in families with a child with Down syndrome: Processes and outcomes

View keynote

Speaker

Monica Cuskelly

Keynote

4:15 PM - 5:15 PM (IST)

Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.

View keynote

Speaker

Kelly Burgoyne

Symposium

5:30 PM - 6:30 PM (IST)

Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions

View symposium

Organizers

Vesna Stojanovik

Kelly Burgoyne

Emma Pagnamenta

Symposium

7:15 PM - 8:15 PM (IST)

Social communication and caregiver-child interactions with individuals with Down syndrome

View symposium

Organizer

Susan J. Loveall

Paper

8:30 PM - 8:50 PM (IST)

Examining the feasibility of audio and video caregiver-collected language measures

View abstract

Lead Author

Marianne Elmquist

Paper

8:50 PM - 9:10 PM (IST)

Early Communication Development in Infants and Toddlers with Down Syndrome

View abstract

Lead Author

Daniela Fanta

Paper

9:10 PM - 9:30 PM (IST)

Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism

View abstract

Lead Author

Anna Stewart

Paper

9:45 PM - 10:05 PM (IST)

Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome

View abstract

Lead Author

Tamar Keren-Portnoy

Paper

10:05 PM - 10:25 PM (IST)

Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention

View abstract

Lead Author

Beate Peter

Symposium

10:40 PM - 12:00 AM (IST)

Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective

View symposium

Organizer

Elizabeth Boatwright

Day 3

2:20 PM - 2:30 PM (IST)

Welcome

Symposium

2:30 PM - 4:00 PM (IST)

Exploring the Mathematical Abilities of Children with Down syndrome

View symposium

Organizer

Stella Xu

Paper

4:15 PM - 4:35 PM (IST)

Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome

View abstract

Lead Author

Laura Hielscher

Paper

4:35 PM - 4:55 PM (IST)

Starting Points for Cultural Change

View abstract

Lead Author

Merelina Houghton

Paper

4:55 PM - 5:15 PM (IST)

Co-production in research: Guidance on research with family carers of people with a learning disability

View abstract

Lead Author

Jo Griffin

Keynote

5:30 PM - 6:30 PM (IST)

Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?

View keynote

Speaker

Sue Buckley

Symposium

7:10 PM - 9:30 PM (IST)

Teaching children with Down syndrome to read: practitioner and international perspectives

View symposium

Organizer

Sue Buckley

Symposium

9:45 PM - 11:05 PM (IST)

Teaching children with Down syndrome to read: family perspectives

View symposium

Organizer

Sue Buckley

Paper

11:20 PM - 11:40 PM (IST)

Literacy Development Milestones in Children with Down Syndrome

View abstract

Lead Author

Jennifer Harris

Paper

11:40 PM - 12:00 AM (IST)

Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance

View abstract

Lead Author

Nancy Raitano Lee