Down Syndrome Research Forum 2025
Program · March 17-19
The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.
Display times for:
Day 1
4:50 AM - 5:00 AM (EDT)
Welcome
Keynote
5:00 AM - 5:45 AM (EDT)
Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome
Speaker
Linda Gilmore
Paper
5:45 AM - 6:05 AM (EDT)
Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome
Lead Author
Chris Jarrold
6:05 AM - 6:20 AM (EDT)
Break
Paper
6:20 AM - 6:40 AM (EDT)
Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome
Lead Author
Susanna Stokes
Paper
6:40 AM - 7:00 AM (EDT)
Social Skills Acquisition in Children and Adolescents with Down Syndrome
Lead Author
S. Onnivello
Paper
7:00 AM - 7:20 AM (EDT)
Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome
Lead Author
Susanna Stokes
Symposium
7:35 AM - 8:45 AM (EDT)
Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome
View symposiumOrganizer
Hana D’Souza
Paper
9:30 AM - 9:50 AM (EDT)
Down syndrome in maternity care: Mothers’ experiences of prenatal screening
Lead Author
Tamar Rutter
Paper
9:50 AM - 10:10 AM (EDT)
Lived experiences of parents who have received a prenatal diagnosis of Down syndrome
Lead Author
Brian Skotko
Paper
10:10 AM - 10:30 AM (EDT)
Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo
Lead Author
Shann Kyle G. Gacho
Paper
10:45 AM - 11:30 AM (EDT)
Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network
Lead Author
Natasha Marrus
Paper
11:30 AM - 12:10 PM (EDT)
Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress
Lead Author
Frank Buckley
Paper
12:25 PM - 12:45 PM (EDT)
The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome
Lead Author
Jessica Mattingly
Paper
12:45 PM - 1:05 PM (EDT)
Attention, working memory, and adaptive skills for adults with Down syndrome
Lead Author
Kayla Kristensen
Paper
1:05 PM - 1:25 PM (EDT)
Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome
Lead Author
Elisa Rossi
Paper
1:40 PM - 2:00 PM (EDT)
Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison
Lead Author
Kaylie Burns
Paper
2:00 PM - 2:20 PM (EDT)
Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome
Lead Author
Jaclyn H. Ford
Paper
2:20 PM - 2:40 PM (EDT)
Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome
Lead Author
Anna Pyle
Day 2
5:20 AM - 5:30 AM (EDT)
Welcome
Keynote
5:30 AM - 6:30 AM (EDT)
The sibling subsystem in families with a child with Down syndrome: Processes and outcomes
Speaker
Monica Cuskelly
Keynote
6:45 AM - 7:45 AM (EDT)
Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.
Speaker
Kelly Burgoyne
Symposium
8:00 AM - 9:00 AM (EDT)
Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions
View symposiumOrganizers
Vesna Stojanovik
Kelly Burgoyne
Emma Pagnamenta
Symposium
9:45 AM - 10:45 AM (EDT)
Social communication and caregiver-child interactions with individuals with Down syndrome
View symposiumOrganizer
Susan J. Loveall
Paper
11:00 AM - 11:20 AM (EDT)
Examining the feasibility of audio and video caregiver-collected language measures
Lead Author
Marianne Elmquist
Paper
11:20 AM - 11:40 AM (EDT)
Early Communication Development in Infants and Toddlers with Down Syndrome
Lead Author
Daniela Fanta
Paper
11:40 AM - 12:00 PM (EDT)
Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism
Lead Author
Anna Stewart
Paper
12:15 PM - 12:35 PM (EDT)
Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome
Lead Author
Tamar Keren-Portnoy
Paper
12:35 PM - 12:55 PM (EDT)
Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention
Lead Author
Beate Peter
Symposium
1:10 PM - 2:30 PM (EDT)
Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective
View symposiumOrganizer
Elizabeth Boatwright
Day 3
4:50 AM - 5:00 AM (EDT)
Welcome
Symposium
5:00 AM - 6:30 AM (EDT)
Exploring the Mathematical Abilities of Children with Down syndrome
View symposiumOrganizer
Stella Xu
Paper
6:45 AM - 7:05 AM (EDT)
Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome
Lead Author
Laura Hielscher
Paper
7:05 AM - 7:25 AM (EDT)
Starting Points for Cultural Change
Lead Author
Merelina Houghton
Paper
7:25 AM - 7:45 AM (EDT)
Co-production in research: Guidance on research with family carers of people with a learning disability
Lead Author
Jo Griffin
Keynote
8:00 AM - 9:00 AM (EDT)
Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?
Speaker
Sue Buckley
Symposium
9:40 AM - 12:00 PM (EDT)
Teaching children with Down syndrome to read: practitioner and international perspectives
View symposiumOrganizer
Sue Buckley
Symposium
12:15 PM - 1:35 PM (EDT)
Teaching children with Down syndrome to read: family perspectives
View symposiumOrganizer
Sue Buckley
Paper
1:50 PM - 2:10 PM (EDT)
Literacy Development Milestones in Children with Down Syndrome
Lead Author
Jennifer Harris
Paper
2:10 PM - 2:30 PM (EDT)
Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance
Lead Author
Nancy Raitano Lee
