2019 Down Syndrome Research Forum Program
Day 1 - 16 September
10.00 - 10.30 - Registration
Coffee, tea and pastries
10.30 - Welcome to Forum
Introduction and housekeeping Jo Van Herwegen
Session 1: School age
10.50 - Early predictors of primary school outcomes in children with Down Syndrome
Hana D'Souza 1-3, Gaia Scerif4, Michael S. C. Thomas3, & LonDownS Consortium
1 Department of Psychology, University of Cambridge
2 Newnham College, University of Cambridge
3 Centre for Brain and Cognitive Development, Birkbeck, University of London
4 Department of Experimental Psychology, University of Oxford
hd425@cam.ac.uk
11.10 - Mediated Learning Intervention for Primary School-aged Children with Down Syndrome
Vesna Stojanovik1, Jo van Herwegen2 and Vanessa Nichols3
1 University of Reading; 2 University College London; 3 Breakthrough Learning
v.stojanovik@reading.ac.uk
11.30 School transition concerns from parents, professionals, and children with Down syndrome and Williams syndrome
Maria Ashworth1, Elizabeth Burchell2, Olympia Palikara2, & Jo Van Herwegen1
1 Psychology and Human Development, UCL, Institute of Education, London, UK
2 School of Education, University of Roehampton, London, UK.
Maria.ashworth@ucl.ac.uk
11.50 Anxiety and well-being in children with Downs Syndrome and Williams Syndrome
Elizabeth Burchell1, Jo Van Herwegen2, Maria Ashworth2, & Olympia Palikara1
1 School of Education, University of Roehampton, London, UK
2 Psychology and Human Development, UCL, Institute of Education, London, UK
Elizabeth.burchell@roehampton.ac.uk
12.10 - 13.10 Lunch
Session 2: Number Development
13.10 - Home Numeracy Environment of children with Down syndrome
Erica Ranzato1, & Jo Van Herwegen2
1 Department of Psychology, Kingston University London
2 Psychology & Human Development, UCL, Institute of Education
e.ranzato@kingston.ac.uk
13.30 Children with Down syndrome and their parents exploring number activities during free-play
Joanna Nye1
1 Department of Psychology, University of Portsmouth, King Henry Building, King Henry I Street, Portsmouth, PO1 2DY, UK
joanna.nye@port.ac.uk
Session 3: Screening and ethics
13.50 Is there evidence to suggest that the NHS promote abortion of babies with Down's syndrome? A Critical Discourse Analysis
Georgia Zimmer
University of Leeds
georgia.zimmer@gmail.com
14.10 Mothers experience of antenatal screening, pre and post birth diagnoses, information and support
Nicola Enoch
Founder, Ups of Downs and Positive about Down syndrome
nicola_enoch@yahoo.co.uk
14.30 - 15.10 Tea and coffee
Session 4: Health
15.10 Supporting families of children with Down syndrome with feeding and eating: Perspectives from healthcare professionals
Silvana Mengoni1, Charlotte Hamlyn-Williams1 & Samantha Rogers1
1 University of Hertfordshire, Hatfield, United Kingdom
s.mengoni@herts.ac.uk
15.30 A physiotherapy intervention
Donna Murphy
Chartered Physiotherapist, Carn Physiotherapy, 50 Slaughtniel Road Maghera Co Derry. BT465NJ
donna_mceld@yahoo.co.uk
15.50 Obstructive sleep apnoea contributes to executive function impairment in young children with Down syndrome
Anna Joyce1, Heather Elphick2, Michael Farquhar3, Paul Gringras3, Hazel Evans4, Romola S Bucks5 Jana Kreppner6, Ruth Kingshott2, Jane Martin7, Janine Reynolds2, Carla Rush3, Johanna Gavlak4, & Catherine M Hill4,8
1 Faculty of Humanities & Social Sciences, Regent's University
2 Sheffield Children's Hospital NHS Foundation Trust
3 Evelina London Children's Hospital, Guys & St Thomas's NHS Trust
4 Southampton Children's Hospital, Southampton University NHS Trust
5 School of Psychological Science, University of Western Australia
6 School of Psychology, University of Southampton
7 Southampton Biomedical Research Unit
8 School of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton
a.joyce@ucl.ac.uk
16.10 Treatment for Obstructive Sleep Apnoea (OSA) in children with Down syndrome (DS): a systematic review
Rina Cianfaglione1, Beth Stuart2, Hazel J. Evans3, & Catherine M Hill13
1 Clinical and Experimental Science, Faculty of Medicine, University of Southampton, UK
2 Primary Care Population Science, Faculty of Medicine, University of Southampton, UK
3 Southampton Children's Hospital, University Hospital Southampton NHS Trust, UK
R.Cianfaglione@soton.ac.uk
16.30 Discussion panel
17.00 End of Day 1
Optional Dinner to give an opportunity for more networking - details to be confirmed
Day 2 - 17 September
8.30 Coffee, tea, pastries
9.00 Introduction and housekeeping Jo Van Herwegen
Session 1: Early development
9.10 Early Brain Development in Down Syndrome
Prachi Patkee1, Olatz Ojinaga Alfageme1,2, Ana Baburamani1, Emily Farran3, Michael Thomas2 & Mary Rutherford1.
1 . Centre for the Developing Brain, School of Biomedical Engineering and Imaging Sciences, King's College London, St.
Thomas' Hospital, London, SE1 7EH, UK
2 . Centre of Brain and Cognitive Development, Department of Psychological Sciences, Birkbeck, University of London,
London, WC1E 7HX, UK
3 . School of Psychology, University of Surrey, Guildford, Surrey, GU2 7XH, UK
prachi.patkee@kcl.ac.uk
9.30 Attention profiles in children with Down Syndrome and Williams Syndrome tested with the Early Child Attention Battery (ECAB)
Janette Atkinson1, Fleur Corbett2, Hana D'Souza3, Oliver Braddick4, & Dean D'Souza2
1 University College London
2 Anglia Ruskin University
3 University of Cambridge
4 Oxford University
j.atkinson@ucl.ac.uk
9.50 Understanding face looking in infants/toddlers with Down syndrome in the context of naturalistic parent-child interaction
Hana D'Souza1 -3, Dean D'Souza3, 4, Dan Brady5, Rosanna Hurst1, Adelaide Mettrick1, Stefania Cangemi4, Veronica Capaldo1,Annette Karmiloff-Smith3, Mark H. Johnson1, Michael S. C. Thomas3, & LonDownS Consortium
1 Department of Psychology, University of Cambridge
2 Newnham College, University of Cambridge
3 Centre for Brain and Cognitive Development, Birkbeck, University of London
4 Faculty of Science and Engineering, Anglia Ruskin University
5 School of Psychology and Clinical Language Sciences, University of Reading
hd425@cam.ac.uk
10.10 The Power of Parents: Understanding the Significance of Parent Child Interaction for Child Development in Down Syndrome
Desiree Grafton-Clarke, Elizabeth Nixon, Eleanor Molloy2,3 & Jean Quigley1
1 Infant & Child Research Lab, School of Psychology, Trinity College Dublin
2 School of Medicine, Dept of Pediatrics, Trinity College Dublin.
3 National Children's Hospital, Tallaght University Hospital.
graftond@tcd.ie
10.30 - 11.10 Tea/ coffee break
Session 2: Co-morbidity
11.10 Exploring parents' experience of their child's dual-diagnosis of DS & ASD
Katie Lambert, Kate Gleeson and Emma Williams.
University of Surrey
k.lambert@surrey.ac.uk
11.30 Visual perception as a window into the nature of autistic-like trait expressions in children with Down syndrome
Jennifer M. Glennon1, Hana D'Souza2, Luke Mason, Annette Karmiloff-
Smith†& Michael S. C. Thomas1
1, School of Psychology, Birkbeck, University of London, UK
2, Department of Psychology, University of Cambridge
3, Newnham College, University of Cambridge
jglenn01@mail.bbk.ac.ukSession 3: Post school intervention
11.50 'I can work' - a pilot project
Wendy Uttley
Down Syndrome Training & Support Service Ltd
office@downsyndromebradford.co.uk
Session 4: Speech and language
12.10 Evaluating a language intervention in the field
Nicola Hart, SLT, Head of Member Services, Down Syndrome Ireland
Nicola@downsyndrome.ie
12.30-13.30 Lunch
13.30 "People think if you can't talk, you don't understand": A qualitative insight into the factors underlying the factors underlying the communication experience of parents with children with Down Syndrome
Elaine Scougal, Nick Hopkins, & Annalu Waller.
University of Dundee
e.scougal@dundee.ac.uk
13.50 The nature of speech articulation difficulties in children with Down syndrome and relationships with language and reading ability
Rebecca Baxter 1, Kelly Burgoyne2, Sue Buckley3
1 University College London, UK
2 University of Manchester, UK
3 Down Syndrome Education International, UK
rbaxter@letsgouk.org
14.10 The effect of age on grammar comprehension in adults with Down syndrome
Alexandra Perovic1 & Ken Wexler2
1 University College London
2 Massachusetts Institute of Technology
a.perovic@ucl.ac.uk
14.50 Evaluating an early social communication intervention for young children with Down syndrome: a feasibility study
Vesna Stojanovik1, Emma Pagnamenta1, Victoria Joffe2, Sarah Rae3
1 University of Reading
2 City, University of London
3 Oxford Health NHS Foundation Trust
v.stojanovik@reading.ac.uk