Down Syndrome Research Forum 2025
Program · March 17-19
The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.
Display times for:
Day 1
21:50 - 22:00 (NZST)
Welcome
Keynote
22:00 - 22:45 (NZST)
Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome
Speaker
Linda Gilmore
Paper
22:45 - 23:05 (NZST)
Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome
Lead Author
Chris Jarrold
23:05 - 23:20 (NZST)
Break
Paper
23:20 - 23:40 (NZST)
Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome
Lead Author
Susanna Stokes
Paper
23:40 - 00:00 (NZST)
Social Skills Acquisition in Children and Adolescents with Down Syndrome
Lead Author
S. Onnivello
Paper
00:00 - 00:20 (NZST)
Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome
Lead Author
Susanna Stokes
Symposium
00:35 - 01:45 (NZST)
Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome
View symposiumOrganizer
Hana D’Souza
Paper
02:30 - 02:50 (NZST)
Down syndrome in maternity care: Mothers’ experiences of prenatal screening
Lead Author
Tamar Rutter
Paper
02:50 - 03:10 (NZST)
Lived experiences of parents who have received a prenatal diagnosis of Down syndrome
Lead Author
Brian Skotko
Paper
03:10 - 03:30 (NZST)
Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo
Lead Author
Shann Kyle G. Gacho
Paper
03:45 - 04:30 (NZST)
Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network
Lead Author
Natasha Marrus
Paper
04:30 - 05:10 (NZST)
Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress
Lead Author
Frank Buckley
Paper
05:25 - 05:45 (NZST)
The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome
Lead Author
Jessica Mattingly
Paper
05:45 - 06:05 (NZST)
Attention, working memory, and adaptive skills for adults with Down syndrome
Lead Author
Kayla Kristensen
Paper
06:05 - 06:25 (NZST)
Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome
Lead Author
Elisa Rossi
Paper
06:40 - 07:00 (NZST)
Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison
Lead Author
Kaylie Burns
Paper
07:00 - 07:20 (NZST)
Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome
Lead Author
Jaclyn H. Ford
Paper
07:20 - 07:40 (NZST)
Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome
Lead Author
Anna Pyle
Day 2
22:20 - 22:30 (NZST)
Welcome
Keynote
22:30 - 23:30 (NZST)
The sibling subsystem in families with a child with Down syndrome: Processes and outcomes
Speaker
Monica Cuskelly
Keynote
23:45 - 00:45 (NZST)
Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.
Speaker
Kelly Burgoyne
Symposium
01:00 - 02:00 (NZST)
Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions
View symposiumOrganizers
Vesna Stojanovik
Kelly Burgoyne
Emma Pagnamenta
Symposium
02:45 - 03:45 (NZST)
Social communication and caregiver-child interactions with individuals with Down syndrome
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Susan J. Loveall
Paper
04:00 - 04:20 (NZST)
Examining the feasibility of audio and video caregiver-collected language measures
Lead Author
Marianne Elmquist
Paper
04:20 - 04:40 (NZST)
Early Communication Development in Infants and Toddlers with Down Syndrome
Lead Author
Daniela Fanta
Paper
04:40 - 05:00 (NZST)
Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism
Lead Author
Anna Stewart
Paper
05:15 - 05:35 (NZST)
Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome
Lead Author
Tamar Keren-Portnoy
Paper
05:35 - 05:55 (NZST)
Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention
Lead Author
Beate Peter
Symposium
06:10 - 07:30 (NZST)
Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective
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Elizabeth Boatwright
Day 3
21:50 - 22:00 (NZST)
Welcome
Symposium
22:00 - 23:30 (NZST)
Exploring the Mathematical Abilities of Children with Down syndrome
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Stella Xu
Paper
23:45 - 00:05 (NZST)
Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome
Lead Author
Laura Hielscher
Paper
00:05 - 00:25 (NZST)
Starting Points for Cultural Change
Lead Author
Merelina Houghton
Paper
00:25 - 00:45 (NZST)
Co-production in research: Guidance on research with family carers of people with a learning disability
Lead Author
Jo Griffin
Keynote
01:00 - 02:00 (NZST)
Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?
Speaker
Sue Buckley
Symposium
02:40 - 05:00 (NZST)
Teaching children with Down syndrome to read: practitioner and international perspectives
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Sue Buckley
Symposium
05:15 - 06:35 (NZST)
Teaching children with Down syndrome to read: family perspectives
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Sue Buckley
Paper
06:50 - 07:10 (NZST)
Literacy Development Milestones in Children with Down Syndrome
Lead Author
Jennifer Harris
Paper
07:10 - 07:30 (NZST)
Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance
Lead Author
Nancy Raitano Lee
