Down Syndrome Research Forum 2025
Program · March 17-19
The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.
Display times for:
Day 1
09:50 - 10:00 (CEST)
Welcome
Keynote
10:00 - 10:45 (CEST)
Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome
Speaker
Linda Gilmore
Paper
10:45 - 11:05 (CEST)
Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome
Lead Author
Chris Jarrold
11:05 - 11:20 (CEST)
Break
Paper
11:20 - 11:40 (CEST)
Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome
Lead Author
Susanna Stokes
Paper
11:40 - 12:00 (CEST)
Social Skills Acquisition in Children and Adolescents with Down Syndrome
Lead Author
S. Onnivello
Paper
12:00 - 12:20 (CEST)
Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome
Lead Author
Susanna Stokes
Symposium
12:35 - 13:45 (CEST)
Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome
View symposiumOrganizer
Hana D’Souza
Paper
14:30 - 14:50 (CEST)
Down syndrome in maternity care: Mothers’ experiences of prenatal screening
Lead Author
Tamar Rutter
Paper
14:50 - 15:10 (CEST)
Lived experiences of parents who have received a prenatal diagnosis of Down syndrome
Lead Author
Brian Skotko
Paper
15:10 - 15:30 (CEST)
Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo
Lead Author
Shann Kyle G. Gacho
Paper
15:45 - 16:30 (CEST)
Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network
Lead Author
Natasha Marrus
Paper
16:30 - 17:10 (CEST)
Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress
Lead Author
Frank Buckley
Paper
17:25 - 17:45 (CEST)
The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome
Lead Author
Jessica Mattingly
Paper
17:45 - 18:05 (CEST)
Attention, working memory, and adaptive skills for adults with Down syndrome
Lead Author
Kayla Kristensen
Paper
18:05 - 18:25 (CEST)
Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome
Lead Author
Elisa Rossi
Paper
18:40 - 19:00 (CEST)
Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison
Lead Author
Kaylie Burns
Paper
19:00 - 19:20 (CEST)
Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome
Lead Author
Jaclyn H. Ford
Paper
19:20 - 19:40 (CEST)
Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome
Lead Author
Anna Pyle
Day 2
10:20 - 10:30 (CEST)
Welcome
Keynote
10:30 - 11:30 (CEST)
The sibling subsystem in families with a child with Down syndrome: Processes and outcomes
Speaker
Monica Cuskelly
Keynote
11:45 - 12:45 (CEST)
Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.
Speaker
Kelly Burgoyne
Symposium
13:00 - 14:00 (CEST)
Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions
View symposiumOrganizers
Vesna Stojanovik
Kelly Burgoyne
Emma Pagnamenta
Symposium
14:45 - 15:45 (CEST)
Social communication and caregiver-child interactions with individuals with Down syndrome
View symposiumOrganizer
Susan J. Loveall
Paper
16:00 - 16:20 (CEST)
Examining the feasibility of audio and video caregiver-collected language measures
Lead Author
Marianne Elmquist
Paper
16:20 - 16:40 (CEST)
Early Communication Development in Infants and Toddlers with Down Syndrome
Lead Author
Daniela Fanta
Paper
16:40 - 17:00 (CEST)
Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism
Lead Author
Anna Stewart
Paper
17:15 - 17:35 (CEST)
Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome
Lead Author
Tamar Keren-Portnoy
Paper
17:35 - 17:55 (CEST)
Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention
Lead Author
Beate Peter
Symposium
18:10 - 19:30 (CEST)
Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective
View symposiumOrganizer
Elizabeth Boatwright
Day 3
09:50 - 10:00 (CEST)
Welcome
Symposium
10:00 - 11:30 (CEST)
Exploring the Mathematical Abilities of Children with Down syndrome
View symposiumOrganizer
Stella Xu
Paper
11:45 - 12:05 (CEST)
Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome
Lead Author
Laura Hielscher
Paper
12:05 - 12:25 (CEST)
Starting Points for Cultural Change
Lead Author
Merelina Houghton
Paper
12:25 - 12:45 (CEST)
Co-production in research: Guidance on research with family carers of people with a learning disability
Lead Author
Jo Griffin
Keynote
13:00 - 14:00 (CEST)
Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?
Speaker
Sue Buckley
Symposium
14:40 - 17:00 (CEST)
Teaching children with Down syndrome to read: practitioner and international perspectives
View symposiumOrganizer
Sue Buckley
Symposium
17:15 - 18:35 (CEST)
Teaching children with Down syndrome to read: family perspectives
View symposiumOrganizer
Sue Buckley
Paper
18:50 - 19:10 (CEST)
Literacy Development Milestones in Children with Down Syndrome
Lead Author
Jennifer Harris
Paper
19:10 - 19:30 (CEST)
Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance
Lead Author
Nancy Raitano Lee
