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Down Syndrome Research Forum 2025

Program · March 17-19

The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.

Day 1

19:50 - 20:00 (AEST)

Welcome

Keynote

20:00 - 20:45 (AEST)

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

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Speaker

Linda Gilmore

Paper

20:45 - 21:05 (AEST)

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

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Lead Author

Chris Jarrold

21:05 - 21:20 (AEST)

Break

Paper

21:20 - 21:40 (AEST)

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

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Lead Author

Susanna Stokes

Paper

21:40 - 22:00 (AEST)

Social Skills Acquisition in Children and Adolescents with Down Syndrome

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Lead Author

S. Onnivello

Paper

22:00 - 22:20 (AEST)

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

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Lead Author

Susanna Stokes

Symposium

22:35 - 23:45 (AEST)

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

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Organizer

Hana D’Souza

Paper

00:30 - 00:50 (AEST)

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

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Lead Author

Tamar Rutter

Paper

00:50 - 01:10 (AEST)

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

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Lead Author

Brian Skotko

Paper

01:10 - 01:30 (AEST)

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

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Lead Author

Shann Kyle G. Gacho

Paper

01:45 - 02:30 (AEST)

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

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Lead Author

Natasha Marrus

Paper

02:30 - 03:10 (AEST)

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

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Lead Author

Frank Buckley

Paper

03:25 - 03:45 (AEST)

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

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Lead Author

Jessica Mattingly

Paper

03:45 - 04:05 (AEST)

Attention, working memory, and adaptive skills for adults with Down syndrome

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Lead Author

Kayla Kristensen

Paper

04:05 - 04:25 (AEST)

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

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Lead Author

Elisa Rossi

Paper

04:40 - 05:00 (AEST)

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

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Lead Author

Kaylie Burns

Paper

05:00 - 05:20 (AEST)

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

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Lead Author

Jaclyn H. Ford

Paper

05:20 - 05:40 (AEST)

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

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Lead Author

Anna Pyle

Day 2

20:20 - 20:30 (AEST)

Welcome

Keynote

20:30 - 21:30 (AEST)

The sibling subsystem in families with a child with Down syndrome: Processes and outcomes

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Speaker

Monica Cuskelly

Keynote

21:45 - 22:45 (AEST)

Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.

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Speaker

Kelly Burgoyne

Symposium

23:00 - 00:00 (AEST)

Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions

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Organizers

Vesna Stojanovik

Kelly Burgoyne

Emma Pagnamenta

Symposium

00:45 - 01:45 (AEST)

Social communication and caregiver-child interactions with individuals with Down syndrome

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Organizer

Susan J. Loveall

Paper

02:00 - 02:20 (AEST)

Examining the feasibility of audio and video caregiver-collected language measures

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Lead Author

Marianne Elmquist

Paper

02:20 - 02:40 (AEST)

Early Communication Development in Infants and Toddlers with Down Syndrome

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Lead Author

Daniela Fanta

Paper

02:40 - 03:00 (AEST)

Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism

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Lead Author

Anna Stewart

Paper

03:15 - 03:35 (AEST)

Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome

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Lead Author

Tamar Keren-Portnoy

Paper

03:35 - 03:55 (AEST)

Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention

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Lead Author

Beate Peter

Symposium

04:10 - 05:30 (AEST)

Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective

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Organizer

Elizabeth Boatwright

Day 3

19:50 - 20:00 (AEST)

Welcome

Symposium

20:00 - 21:30 (AEST)

Exploring the Mathematical Abilities of Children with Down syndrome

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Organizer

Stella Xu

Paper

21:45 - 22:05 (AEST)

Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome

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Lead Author

Laura Hielscher

Paper

22:05 - 22:25 (AEST)

Starting Points for Cultural Change

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Lead Author

Merelina Houghton

Paper

22:25 - 22:45 (AEST)

Co-production in research: Guidance on research with family carers of people with a learning disability

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Lead Author

Jo Griffin

Keynote

23:00 - 00:00 (AEST)

Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?

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Speaker

Sue Buckley

Symposium

00:40 - 03:00 (AEST)

Teaching children with Down syndrome to read: practitioner and international perspectives

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Organizer

Sue Buckley

Symposium

03:15 - 04:35 (AEST)

Teaching children with Down syndrome to read: family perspectives

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Organizer

Sue Buckley

Paper

04:50 - 05:10 (AEST)

Literacy Development Milestones in Children with Down Syndrome

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Lead Author

Jennifer Harris

Paper

05:10 - 05:30 (AEST)

Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance

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Lead Author

Nancy Raitano Lee