Down Syndrome Research Forum 2025
Program · March 17-19
The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.
Display times for:
Day 1
16:50 - 17:00 (CST)
Welcome
Keynote
17:00 - 17:45 (CST)
Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome
Speaker
Linda Gilmore
Paper
17:45 - 18:05 (CST)
Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome
Lead Author
Chris Jarrold
18:05 - 18:20 (CST)
Break
Paper
18:20 - 18:40 (CST)
Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome
Lead Author
Susanna Stokes
Paper
18:40 - 19:00 (CST)
Social Skills Acquisition in Children and Adolescents with Down Syndrome
Lead Author
S. Onnivello
Paper
19:00 - 19:20 (CST)
Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome
Lead Author
Susanna Stokes
Symposium
19:35 - 20:45 (CST)
Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome
View symposiumOrganizer
Hana D’Souza
Paper
21:30 - 21:50 (CST)
Down syndrome in maternity care: Mothers’ experiences of prenatal screening
Lead Author
Tamar Rutter
Paper
21:50 - 22:10 (CST)
Lived experiences of parents who have received a prenatal diagnosis of Down syndrome
Lead Author
Brian Skotko
Paper
22:10 - 22:30 (CST)
Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo
Lead Author
Shann Kyle G. Gacho
Paper
22:45 - 23:30 (CST)
Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network
Lead Author
Natasha Marrus
Paper
23:30 - 00:10 (CST)
Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress
Lead Author
Frank Buckley
Paper
00:25 - 00:45 (CST)
The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome
Lead Author
Jessica Mattingly
Paper
00:45 - 01:05 (CST)
Attention, working memory, and adaptive skills for adults with Down syndrome
Lead Author
Kayla Kristensen
Paper
01:05 - 01:25 (CST)
Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome
Lead Author
Elisa Rossi
Paper
01:40 - 02:00 (CST)
Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison
Lead Author
Kaylie Burns
Paper
02:00 - 02:20 (CST)
Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome
Lead Author
Jaclyn H. Ford
Paper
02:20 - 02:40 (CST)
Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome
Lead Author
Anna Pyle
Day 2
17:20 - 17:30 (CST)
Welcome
Keynote
17:30 - 18:30 (CST)
The sibling subsystem in families with a child with Down syndrome: Processes and outcomes
Speaker
Monica Cuskelly
Keynote
18:45 - 19:45 (CST)
Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.
Speaker
Kelly Burgoyne
Symposium
20:00 - 21:00 (CST)
Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions
View symposiumOrganizers
Vesna Stojanovik
Kelly Burgoyne
Emma Pagnamenta
Symposium
21:45 - 22:45 (CST)
Social communication and caregiver-child interactions with individuals with Down syndrome
View symposiumOrganizer
Susan J. Loveall
Paper
23:00 - 23:20 (CST)
Examining the feasibility of audio and video caregiver-collected language measures
Lead Author
Marianne Elmquist
Paper
23:20 - 23:40 (CST)
Early Communication Development in Infants and Toddlers with Down Syndrome
Lead Author
Daniela Fanta
Paper
23:40 - 00:00 (CST)
Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism
Lead Author
Anna Stewart
Paper
00:15 - 00:35 (CST)
Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome
Lead Author
Tamar Keren-Portnoy
Paper
00:35 - 00:55 (CST)
Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention
Lead Author
Beate Peter
Symposium
01:10 - 02:30 (CST)
Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective
View symposiumOrganizer
Elizabeth Boatwright
Day 3
16:50 - 17:00 (CST)
Welcome
Symposium
17:00 - 18:30 (CST)
Exploring the Mathematical Abilities of Children with Down syndrome
View symposiumOrganizer
Stella Xu
Paper
18:45 - 19:05 (CST)
Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome
Lead Author
Laura Hielscher
Paper
19:05 - 19:25 (CST)
Starting Points for Cultural Change
Lead Author
Merelina Houghton
Paper
19:25 - 19:45 (CST)
Co-production in research: Guidance on research with family carers of people with a learning disability
Lead Author
Jo Griffin
Keynote
20:00 - 21:00 (CST)
Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?
Speaker
Sue Buckley
Symposium
21:40 - 00:00 (CST)
Teaching children with Down syndrome to read: practitioner and international perspectives
View symposiumOrganizer
Sue Buckley
Symposium
00:15 - 01:35 (CST)
Teaching children with Down syndrome to read: family perspectives
View symposiumOrganizer
Sue Buckley
Paper
01:50 - 02:10 (CST)
Literacy Development Milestones in Children with Down Syndrome
Lead Author
Jennifer Harris
Paper
02:10 - 02:30 (CST)
Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance
Lead Author
Nancy Raitano Lee
