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Down Syndrome Research Forum 2025

Program · March 17-19

The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.

Day 1

04:50 - 05:00 (EDT)

Welcome

Keynote

05:00 - 05:45 (EDT)

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

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Speaker

Linda Gilmore

Paper

05:45 - 06:05 (EDT)

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

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Lead Author

Chris Jarrold

06:05 - 06:20 (EDT)

Break

Paper

06:20 - 06:40 (EDT)

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

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Lead Author

Susanna Stokes

Paper

06:40 - 07:00 (EDT)

Social Skills Acquisition in Children and Adolescents with Down Syndrome

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Lead Author

S. Onnivello

Paper

07:00 - 07:20 (EDT)

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

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Lead Author

Susanna Stokes

Symposium

07:35 - 08:45 (EDT)

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

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Organizer

Hana D’Souza

Paper

09:30 - 09:50 (EDT)

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

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Lead Author

Tamar Rutter

Paper

09:50 - 10:10 (EDT)

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

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Lead Author

Brian Skotko

Paper

10:10 - 10:30 (EDT)

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

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Lead Author

Shann Kyle G. Gacho

Paper

10:45 - 11:30 (EDT)

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

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Lead Author

Natasha Marrus

Paper

11:30 - 12:10 (EDT)

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

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Lead Author

Frank Buckley

Paper

12:25 - 12:45 (EDT)

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

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Lead Author

Jessica Mattingly

Paper

12:45 - 13:05 (EDT)

Attention, working memory, and adaptive skills for adults with Down syndrome

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Lead Author

Kayla Kristensen

Paper

13:05 - 13:25 (EDT)

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

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Lead Author

Elisa Rossi

Paper

13:40 - 14:00 (EDT)

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

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Lead Author

Kaylie Burns

Paper

14:00 - 14:20 (EDT)

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

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Lead Author

Jaclyn H. Ford

Paper

14:20 - 14:40 (EDT)

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

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Lead Author

Anna Pyle

Day 2

05:20 - 05:30 (EDT)

Welcome

Keynote

05:30 - 06:30 (EDT)

The sibling subsystem in families with a child with Down syndrome: Processes and outcomes

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Speaker

Monica Cuskelly

Keynote

06:45 - 07:45 (EDT)

Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.

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Speaker

Kelly Burgoyne

Symposium

08:00 - 09:00 (EDT)

Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions

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Organizers

Vesna Stojanovik

Kelly Burgoyne

Emma Pagnamenta

Symposium

09:45 - 10:45 (EDT)

Social communication and caregiver-child interactions with individuals with Down syndrome

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Organizer

Susan J. Loveall

Paper

11:00 - 11:20 (EDT)

Examining the feasibility of audio and video caregiver-collected language measures

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Lead Author

Marianne Elmquist

Paper

11:20 - 11:40 (EDT)

Early Communication Development in Infants and Toddlers with Down Syndrome

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Lead Author

Daniela Fanta

Paper

11:40 - 12:00 (EDT)

Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism

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Lead Author

Anna Stewart

Paper

12:15 - 12:35 (EDT)

Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome

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Lead Author

Tamar Keren-Portnoy

Paper

12:35 - 12:55 (EDT)

Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention

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Lead Author

Beate Peter

Symposium

13:10 - 14:30 (EDT)

Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective

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Organizer

Elizabeth Boatwright

Day 3

04:50 - 05:00 (EDT)

Welcome

Symposium

05:00 - 06:30 (EDT)

Exploring the Mathematical Abilities of Children with Down syndrome

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Organizer

Stella Xu

Paper

06:45 - 07:05 (EDT)

Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome

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Lead Author

Laura Hielscher

Paper

07:05 - 07:25 (EDT)

Starting Points for Cultural Change

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Lead Author

Merelina Houghton

Paper

07:25 - 07:45 (EDT)

Co-production in research: Guidance on research with family carers of people with a learning disability

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Lead Author

Jo Griffin

Keynote

08:00 - 09:00 (EDT)

Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?

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Speaker

Sue Buckley

Symposium

09:40 - 12:00 (EDT)

Teaching children with Down syndrome to read: practitioner and international perspectives

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Organizer

Sue Buckley

Symposium

12:15 - 13:35 (EDT)

Teaching children with Down syndrome to read: family perspectives

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Organizer

Sue Buckley

Paper

13:50 - 14:10 (EDT)

Literacy Development Milestones in Children with Down Syndrome

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Lead Author

Jennifer Harris

Paper

14:10 - 14:30 (EDT)

Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance

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Lead Author

Nancy Raitano Lee