DSE Privacy Policy

Data privacy is important to DSE, which includes Down Syndrome Education International, Down Syndrome Education USA and Down Syndrome Education Enterprises CIC ("DSE").

This Privacy Policy explains how information is collected, used and disclosed by DSE and applies to information collected when you use or access our websites, products, services or applications, or when you participate in a research study, when you make a purchase from one of our online stores or when you otherwise interact with us (collectively, "DSE Services"). We respect the privacy rights of our clients and recognise the importance of protecting information collected about you.

Information we collect

We collect information that you provide to us when you access DSE Services. We also collect some information automatically when you use DSE Services. We describe the information collected through these means below.

We do not collect information about you from third-party organizations except in limited circumstances where your permission has been given (see below).

Information you provide to us

We collect information you provide directly to us including when you visit one of our websites, register for and/or use one of the DSE Services. This includes:

Information we collect automatically when you use DSE services

When you access or use DSE Services, we may automatically collect information about you, including:


You may opt out of receiving newsletter/updates emails from DSE by following the opt-out instructions provided in those emails. You may also opt-out of receiving newsletter/updates emails and other promotional communications from us at any time by emailing hello@dseinternational.org with your specific request. If you opt out, we may still send you other communications, such as notices related to your access to or use of DSE Services - for example, order confirmations and replies to requests for advice.

Disabling cookies

Most web browsers are set to accept cookies by default. If you prefer, you can usually choose to set your browser to remove or reject browser cookies or to prompt you before accepting such a cookie. Please note that, if you choose to remove or reject browser cookies, this could affect the availability or functionality of DSE Services that depend on them.

Browser "do not track" options

Some browsers offer a "do not track" ("DNT") option. Because no common industry or legal standard for DNT has been adopted by industry groups, technology companies or regulators, we do not respond to DNT signals. We will make efforts to continue to monitor developments around DNT browser technology and the implementation of a standard.

Information we collect from other sources

We may also obtain information from third parties and combine that with information we collect. This will always be in accordance with the third-party's privacy policy and any consents you have given the third-party. For example:

How do we use your information?

We may use the information collected through DSE Services for the limited purpose of providing those services. The information may be used for a variety of purposes, including:

Sharing information

We share information with selected third parties to help us deliver some of our services.

Security and data storage

We have implemented appropriate technical and organisational controls to protect your personal data against unauthorised processing and against accidental loss, damage or destruction. For example:

You are responsible for choosing a secure password when we ask you to set up a password to access parts of our sites or apps. You should keep this password confidential and you should choose a password that you do not use on any other site. You should not share your password with anyone else, including anyone who works for us.

Unfortunately, sending information via the internet is not completely secure. Although we will do our best to protect your personal data in transit and once with us, we cannot guarantee the security of any personal data sent to our site while still in transit and so you provide it at your own risk. Please also note that emails are not routinely encrypted when in transit from your mail provider to ours via the Internet.

We store data securely on systems located in the UK, the USA and Canada.

We will only use your personal data where we have a legal ground to do so. We determine the legal grounds based on the purposes for which we have collected and used your personal data. In every case, the legal ground will be one of the following:

Updates, corrections and data deletion

You can request details about any personal information we hold about you and to ask that your personal information be corrected, updated, or deleted by contacting us.


We may update this privacy policy from time to time in order to reflect, for example, changes to our practices or for other operational, legal or regulatory reasons.

Contact us

For more information about our privacy practices, if you have questions, or if you would like to make a complaint, please contact us by e-mail or by mail using the details provided below:

Down Syndrome Education International 6 Underley Business Centre Kirkby Lonsdale Cumbria LA6 2DY UK


Down Syndrome Education USA 1048 Irvine Avenue, Suite 575 Newport Beach, CA 92660 USA


Down Syndrome Education Enterprises CIC 6 Underley Business Centre Kirkby Lonsdale Cumbria LA6 2DY UK


This policy was last updated on 4 April 2024 (version 20240404A).