Down Syndrome Research Forum 2025
Program · March 17-19
The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.
Display times for:
Day 1
8:50 a.m. - 9:00 a.m. (IST)
Welcome
Keynote
9:00 a.m. - 9:45 a.m. (IST)
Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome
Speaker
Linda Gilmore
Paper
9:45 a.m. - 10:05 a.m. (IST)
Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome
Lead Author
Chris Jarrold
10:05 a.m. - 10:20 a.m. (IST)
Break
Paper
10:20 a.m. - 10:40 a.m. (IST)
Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome
Lead Author
Susanna Stokes
Paper
10:40 a.m. - 11:00 a.m. (IST)
Social Skills Acquisition in Children and Adolescents with Down Syndrome
Lead Author
S. Onnivello
Paper
11:00 a.m. - 11:20 a.m. (IST)
Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome
Lead Author
Susanna Stokes
Symposium
11:35 a.m. - 12:45 p.m. (IST)
Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome
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Hana D’Souza
Paper
1:30 p.m. - 1:50 p.m. (IST)
Down syndrome in maternity care: Mothers’ experiences of prenatal screening
Lead Author
Tamar Rutter
Paper
1:50 p.m. - 2:10 p.m. (IST)
Lived experiences of parents who have received a prenatal diagnosis of Down syndrome
Lead Author
Brian Skotko
Paper
2:10 p.m. - 2:30 p.m. (IST)
Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo
Lead Author
Shann Kyle G. Gacho
Paper
2:45 p.m. - 3:30 p.m. (IST)
Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network
Lead Author
Natasha Marrus
Paper
3:30 p.m. - 4:10 p.m. (IST)
Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress
Lead Author
Frank Buckley
Paper
4:25 p.m. - 4:45 p.m. (IST)
The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome
Lead Author
Jessica Mattingly
Paper
4:45 p.m. - 5:05 p.m. (IST)
Attention, working memory, and adaptive skills for adults with Down syndrome
Lead Author
Kayla Kristensen
Paper
5:05 p.m. - 5:25 p.m. (IST)
Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome
Lead Author
Elisa Rossi
Paper
5:40 p.m. - 6:00 p.m. (IST)
Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison
Lead Author
Kaylie Burns
Paper
6:00 p.m. - 6:20 p.m. (IST)
Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome
Lead Author
Jaclyn H. Ford
Paper
6:20 p.m. - 6:40 p.m. (IST)
Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome
Lead Author
Anna Pyle
Day 2
9:20 a.m. - 9:30 a.m. (IST)
Welcome
Keynote
9:30 a.m. - 10:30 a.m. (IST)
The sibling subsystem in families with a child with Down syndrome: Processes and outcomes
Speaker
Monica Cuskelly
Keynote
10:45 a.m. - 11:45 a.m. (IST)
Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.
Speaker
Kelly Burgoyne
Symposium
12:00 p.m. - 1:00 p.m. (IST)
Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions
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Vesna Stojanovik
Kelly Burgoyne
Emma Pagnamenta
Symposium
1:45 p.m. - 2:45 p.m. (IST)
Social communication and caregiver-child interactions with individuals with Down syndrome
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Susan J. Loveall
Paper
3:00 p.m. - 3:20 p.m. (IST)
Examining the feasibility of audio and video caregiver-collected language measures
Lead Author
Marianne Elmquist
Paper
3:20 p.m. - 3:40 p.m. (IST)
Early Communication Development in Infants and Toddlers with Down Syndrome
Lead Author
Daniela Fanta
Paper
3:40 p.m. - 4:00 p.m. (IST)
Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism
Lead Author
Anna Stewart
Paper
4:15 p.m. - 4:35 p.m. (IST)
Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome
Lead Author
Tamar Keren-Portnoy
Paper
4:35 p.m. - 4:55 p.m. (IST)
Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention
Lead Author
Beate Peter
Symposium
5:10 p.m. - 6:30 p.m. (IST)
Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective
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Elizabeth Boatwright
Day 3
8:50 a.m. - 9:00 a.m. (IST)
Welcome
Symposium
9:00 a.m. - 10:30 a.m. (IST)
Exploring the Mathematical Abilities of Children with Down syndrome
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Stella Xu
Paper
10:45 a.m. - 11:05 a.m. (IST)
Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome
Lead Author
Laura Hielscher
Paper
11:05 a.m. - 11:25 a.m. (IST)
Starting Points for Cultural Change
Lead Author
Merelina Houghton
Paper
11:25 a.m. - 11:45 a.m. (IST)
Co-production in research: Guidance on research with family carers of people with a learning disability
Lead Author
Jo Griffin
Keynote
12:00 p.m. - 1:00 p.m. (IST)
Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?
Speaker
Sue Buckley
Symposium
1:40 p.m. - 4:00 p.m. (IST)
Teaching children with Down syndrome to read: practitioner and international perspectives
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Sue Buckley
Symposium
4:15 p.m. - 5:35 p.m. (IST)
Teaching children with Down syndrome to read: family perspectives
View symposiumOrganizer
Sue Buckley
Paper
5:50 p.m. - 6:10 p.m. (IST)
Literacy Development Milestones in Children with Down Syndrome
Lead Author
Jennifer Harris
Paper
6:10 p.m. - 6:30 p.m. (IST)
Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance
Lead Author
Nancy Raitano Lee
