Programme - Down Syndrome Research Forum 2022
The Down Syndrome Research Forum 2022 is being hosted online. All times stated are UK (GMT/UTC/+00:00) time.
Click the programme headers to view the abstracts for each session.
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Day 1
09:00 Welcome
09:05 Invited Keynote
Chair: Sue Buckley
The Emerging Phenotype in Infants with Down Syndrome: Adaptations to Atypical Constraints
Hana D'Souza 1,2 & Dean D'Souza 3
- Department of Psychology & Newnham College, University of Cambridge
- School of Psychology, Cardiff University
- Department of Psychology, City, University of London
10:20 Break
10:35 Papers: AAC
Chair: Silvana Mengoni
Augmentative and Alternative Communication and Down Syndrome: A literature review and PhD overview
Elaine Scougal, PhD Student, University of Dundee
The Development of a Core Key Word Signing Vocabulary (Lámh) to Facilitate Communication with Children with Down Syndrome in the First Year of Mainstream Primary School in Ireland
Pauline Frizelle and Caoimhe Lyons, Department of Speech and Hearing Sciences, University College Cork, Ireland
The impact of embedding key word sign prompts in a shared book reading activity, on children with Down syndrome and their parents.
Pauline Frizelle, Rebecca Allenby, Elizabeth Hassett, Orlaith Holland, Eimear Ryan, and Ciara O'Toole; Department of Speech and Hearing Sciences, University College Cork, Ireland
11:45 Break
11:55 Papers: Services
Chair: Kelly Burgoyne
Developing an integrated NHS therapy pathway for supporting babies and young children with Down Syndrome
Lauren Newman, Kate Marshall and Karen Fisher - Speech and Language Therapists, Barts Health NHS Trust.
Speech and Language Therapy services for people with Down syndrome - the disparity between research and practice
Pauline Frizelle 1, Anna Ceroni 1, Lorna Bateman 2, Nicola Hart 3
- Department of Speech and Hearing Sciences, University College Cork, Republic of Ireland
- Psychology Department, Cork North Lee, Health Services Executive, Republic of Ireland
- Down syndrome Ireland, Dublin, Republic of Ireland
The new RCSLT Clinical Excellence Network (CEN) for Down syndrome
Becky Baxter, Chair (LETS Go)
12:55 Lunch
13:30 Papers: Interventions
Chair: Silvana Mengoni
Introducing PACT-DS: A Study to Adapt and Evaluate a Parent-Delivered Early Language Intervention for Children with Down Syndrome
Kelly Burgoyne 1, Emma Pagnamenta 2, and Vesna Stojanovik 2
- Manchester Institute of Education, University of Manchester, UK
- University of Reading, UK
Early Social Communication Intervention for Young Children with Down Syndrome: ASCEND study update
Vesna Stojanovik 1, Emma Pagnamenta 1, Sarah Sampson 1, Rachel Sutton 1, Kate Harvey 1, Victoria Joffe 2, Elena Pizzo 3, Sarah Rae 4, Nita Madhani 5
- University of Reading, School of Psychology and Clinical Language Sciences
- University of Essex
- University College London
- Oxford Healthcare Foundation Trust
- North East London Foundation Trust
Speech matters: a review of the evidence and practical implications
Sue Buckley, University of Portsmouth; Down Syndrome Education International
Down Syndrome Toolkit for Paediatric SLT: development, publications and feedback
Susan Chryssovergis Lancashire NHS Trust
14:55 Break
15:05 Papers: The Impacts of COVID-19
Chair: Kelly Burgoyne
Families with Down Syndrome: inclusion/exclusion and COVID-19
Andrea Tonner, University of Strathclyde
Anxiety and Worries of Individuals with Down Syndrome During the COVID-19 Pandemic: A Comparative Study in the UK
Sideropoulos, V. 1, Kye, H. 1, Dukes, D. 2,3, Samson, A. C. 2,4, Palikara, O. 5, & Van Herwegen, J. 1
- Department of Psychology and Human Development, UCL, Institute of Education, University College London, London, UK
- Institute of Special Education, University of Fribourg, Switzerland
- Swiss Center for Affective Sciences, University of Geneva, Switzerland
- Faculty of Psychology, Unidistance Suisse, Brig, Switzerland
- Department for Education Studies, University of Warwick, Coventry, UK
The lived experiences of new mothers accessing feeding support services for infants with Down syndrome during the COVID-19 pandemic
Laura Hielscher, Amanda Ludlow, Silvana Mengoni, Samantha Rogers and Karen Irvine (University of Hertfordshire)
16:15 Break
16:25 Papers: Brain Development
Chair: Vesna Stojanovik
Individualised assessment of regional brain volumes in neonates with Down syndrome reveals extreme deviation in white matter and cerebellum
Abi Fukami-Gartner 1,2, Ana A. Baburamani 1, Ralica Dimitrova 1,5, Prachi A. Patkee 1, Olatz Ojinaga Alfageme 1,3, Alexandra F. Bonthrone 1, Alena Uus 1,4, Emer Hughes 1, Maria Deprez 1,4, Serena J. Counsell 1, Joseph V. Hajnal 1,4, A. David Edwards 1,2, Jonathan O'Muircheartaigh 1,2,5, and Mary A. Rutherford 1,2
- Centre for the Developing Brain, School of Biomedical Engineering and Imaging Sciences, King's College London, St. Thomas' Hospital, UK
- MRC Centre for Neurodevelopmental Disorders, King's College London, UK
- Centre for Brain and Cognitive Development, Birkbeck, University of London, UK
- Biomedical Engineering Department, School of Biomedical Engineering and Imaging Sciences, King's College London, UK
- Department of Forensic and Neurodevelopmental Science, Sackler Institute for Translational Neurodevelopment, Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK
16:45 Closing Discussion
Day 2
09:00 Welcome
09:05 Symposium: Mathematical Development and Learning in Students with Down Syndrome
Chair: Kate Cain
Exploring relative strengths in Down's Syndrome: Spatial thinking and its role in mathematics
Katie A. Gilligan-Lee, Emily K. Farran, Su Morris; University of Surrey.
Teaching mathematics to students with Down syndrome
Erica Ranzato and Jo Van Herwegen Department of Psychology and Human Development, Institute of Education, IOE, UCL's Faculty of Education and Society, London.
Fundamental mathematical gaps for students with Down Syndrome
Karen McGuigan, Founder and Author of the Maths For Life programme
Improving mathematical outcomes in individuals with Down syndrome
Jo Van Herwegen Department of Psychology and Human Development, Institute of Education, IOE, UCL's Faculty of Education and Society, London.
10:35 Break
10:45 Papers: Education
Chair: Kelly Burgoyne
Inclusive Education Project UK, 2021-22
Chris Barnes, Inclusive Education Officer, Down Syndrome International
Developing a functional reading tool with teenagers and adults with Down syndrome
Pauline Frizelle 1, Sean O'Donovan 1, Lisa Martin 2, Nicola Hart 2
- Department of Speech and Hearing Sciences, University College Cork, Republic of Ireland
- Down Syndrome Ireland, Dublin, Republic of Ireland
The Importance of Parent-Teacher Communication
Fidelma Brady, Head of Education - Down Syndrome Ireland
Developing evidence-based inclusive education guidelines for early intervention and education
Sue Buckley 1,2
- University of Portsmouth, UK
- Down Syndrome Education International
12:15 Lunch
13:00 Papers: Interventions
Chair: Sue Buckley
Pediatric Assisted Cycle Therapy for Children with Down Syndrome: A Pilot Study for Product Development
Shannon D. R. Ringenbach, Jordan M. Santos, Jordan Stupka, Bryn Gunther, Sujan Parab, Carter Coray, & Kelley Baxter, Arizona State University
The power of music to change lives - Setting up an Inclusive Choir for Young People with/without additional needs
Jo Bryenton - Makaton Tutor, Rachel Whittaker - Choir Leader, Caroline Hall - Chair of Trustees, North Yorkshire Music Therapy Centre
Down Syndrome Ireland's Personal Development Programme
Aoife Gaffney, Head of Employment, Sinéad Flynn, Adult Education Officer, Down Syndrome Ireland
14:10 Break
14:20 Papers: Parent Experiences and Implications
Chair: Vesna Stojanovik
Nystagmus in Down syndrome
Maggie Woodhouse 1, Nicola Enoch 2
- University of Cardiff
- DSUK and Positive about Down syndrome (PADS)
Breastfeeding a baby with Down syndrome
Nicola Enoch, Positive about Down syndrome
15:00 Break
15:15 Papers: Teens and Adults
Chair: Kate Cain
Spatial abilities in Down syndrome: profiles and developmental trajectories
Su Morris, Emily K. Farran, Katie A. Gilligan-Lee; University of Surrey
Post High School Outcomes for Young Adults with Down Syndrome in the United States
Susan J. Loveall 1, Marie Moore Channell 2, Meghan Burke 2, Derek Rodgers 1
- University of Nebraska
- University of Illinois at Urbana-Champaign
Narrative language abilities in adults with Down syndrome: A remote online elicitation study using the Multilingual Assessment Instrument for Narratives (MAIN)
Elisa Mattiauda 1, Alexandra Perovic 1, Angela Hassiotis 2
- Division of Psychology and Language Sciences, University College London (UCL), UK
- Department of Psychiatry, University College London (UCL), UK
The Unique Contribution of Episodic Memory on Community Adaptive Behavior Skills in Young Adults with Down Syndrome
Chelsea Chen B.S., Kristina Baggett B.A., Gayle Faught Ph.D., Frances Conners Ph.D., The University of Alabama, Tuscaloosa, AL
16:35 General Discussion and Questions
Chair: Sue Buckley
