2018 Down Syndrome Research Forum Program

Day 1 - Improving services and education

9:30-10:00 - Registration
10:00-10:10 - Welcome to Forum and to Reading University

Speech and language

10:15-10:40 - An evaluation of a language intervention for children with Down syndrome

Rebecca Baxter, SLT, PhD student, Division of Psychology and Language Sciences, Language and Cognition, University College London

10:40-11:05 - Speech and Language Therapy for a 4 year old boy with Down Syndrome delivered via telehealth – a single case study

Alys Mathers, Highly Specialist Speech and Language Therapist, UK

11:05-11:15 - General discussion – challenges and approaches to speech and language intervention

11:15-11.45 - Break

Education and early intervention

11:45- 12:15 - An approach to developmental assessment

Monica Bray, Speech and Language therapist, MPHIL Consultant to Project Together 21
Maggie Hart MA Ed Educational Consultant to Project Together 21, Darlington UK

12:15-12:45 - Improving cognitive abilities in children with Down syndrome via mediated learning: a pilot randomised control trial

Vesna Stojanovik, University of Reading, UK
Vanessa Nichols, Breakthrough Learning Charity, UK
Jo van Herwegen, Kingston University, UK

Lunch 12:45-13:45
13:45-14:15 - Using the SmiLE Therapy intervention with school age children with Down syndrome.

Sandra Redman, Downright Excellent charity co-worker

14:15-14:45 - Supporting children with Down Syndrome in mainstream schools in Essex

Tracey Bryant, Specialist Teacher – Learning Difficulties and Disabilities, Specialist Teaching and Preschool Service SEN/AEN Provider Services, Essex County Council

14:45-15:15 - Transition from primary to secondary school: the case of Down syndrome

Jo Van Herwegen, Associate Professor in Developmental Psychology, Kingston University, London
Maria Ashworth, Research Assistant, Kingston University, London
Elizabeth Burchell, Research Assistant, University of Roehampton, London
Olympia Palikara, Senior Lecturer in Educational Psychology, University of Roehampton, London

15:15-15:45 Break
15:45- 16:15 - "I am not Down syndrome": A Narrative Exploration of Life and Identity in School-Leavers with Down syndrome.

Annie Kent, Trainee Educational Psychologist, Birmingham, UK

16:15-16:45 - General discussion of education issues
18.30 – Conference dinner – details to be confirmed

Day 2 - Advances in Research


10:00-10:30 - Non-verbal ability as a predictor of language in children with Down syndrome

Emily Seager, University of Reading , Emily Mason-Apps, University of Portsmouth
Vesna Stojanovik, University of Reading

10:30-11.00 - Comprehension of definite pronouns and reflexives in individuals with Down Syndrome

Helen Goodluck, University of York

11:00-11:30 - Break
11:30-12:00 - Profiling language abilities in bilinguals with Down syndrome

Rebecca Ward and Dr Eirini Sanoudaki, School of Linguistics and English Language


12:00-12:30 - Perceptual and acoustic features of speech in Down syndrome and their impact on intelligibility

Deirdre O'Leary, Dr Alice Lee, Dr Ciara O'Toole, Prof Fiona Gibbon Department of Speech and Hearing Sciences, University College Cork, Ireland

12:30-13:30 - Lunch

Early developmental profiles

13:30-14:00 - Understanding development in infants and toddlers with Down syndrome

Hana D'Souza, Daniel Brady, Esha Massand, Annette Karmiloff-Smith, Denis Mareschal, & Michael S. C. Thomas, Centre for Brain & Cognitive Development, Birkbeck, University of London, LonDownS Consortium

14:00-14:30 - An investigation of the relationships between parental feeding practices and eating behaviours of children with Down syndrome

Dr Samantha Rogers and Dr Silvana Mengoni, University of Hertfordshire.

14:30-15:00 - Break


15:00- 15:30 - Differential effects of Alzheimer's disease genetic risk (APOE e4) across the lifespan in Down syndrome

Hana D'Souza, Daniel Brady, Esha Massand, Annette Karmiloff-Smith, Denis Mareschal, Michael S. C. Thomas, Centre for Brain & Cognitive Development, Birkbeck, University of London & the LonDownS Consortium

Face processing

15:30-16:00 - A cross-syndrome comparison of face processing in Down Syndrome and Williams Syndrome.

Emily Farran, Department of Psychology and Human Development, UCL Institute of Education, University College London, UK, Ines Mares, Department of Psychological Sciences, Birkbeck College, London, UK , Louise Ewing, Department of Psychology, University of East Anglia, Norwich, UK Annette Karmiloff-Smith Marie L. Smith Department of Psychological Sciences, Birkbeck College, London, UK

16:00 - Final discussion and plans for 2019
16:30 - Conference ends