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Down Syndrome Research Forum 2025

Program · March 17-19

The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.

Day 1

3:50 am - 4:00 am (CDT)

Welcome

Keynote

4:00 am - 4:45 am (CDT)

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

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Speaker

Linda Gilmore

Paper

4:45 am - 5:05 am (CDT)

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

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Lead Author

Chris Jarrold

5:05 am - 5:20 am (CDT)

Break

Paper

5:20 am - 5:40 am (CDT)

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

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Lead Author

Susanna Stokes

Paper

5:40 am - 6:00 am (CDT)

Social Skills Acquisition in Children and Adolescents with Down Syndrome

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Lead Author

S. Onnivello

Paper

6:00 am - 6:20 am (CDT)

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

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Lead Author

Susanna Stokes

Symposium

6:35 am - 7:45 am (CDT)

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

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Organizer

Hana D’Souza

Paper

8:30 am - 8:50 am (CDT)

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

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Lead Author

Tamar Rutter

Paper

8:50 am - 9:10 am (CDT)

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

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Lead Author

Brian Skotko

Paper

9:10 am - 9:30 am (CDT)

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

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Lead Author

Shann Kyle G. Gacho

Paper

9:45 am - 10:30 am (CDT)

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

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Lead Author

Natasha Marrus

Paper

10:30 am - 11:10 am (CDT)

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

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Lead Author

Frank Buckley

Paper

11:25 am - 11:45 am (CDT)

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

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Lead Author

Jessica Mattingly

Paper

11:45 am - 12:05 pm (CDT)

Attention, working memory, and adaptive skills for adults with Down syndrome

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Lead Author

Kayla Kristensen

Paper

12:05 pm - 12:25 pm (CDT)

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

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Lead Author

Elisa Rossi

Paper

12:40 pm - 1:00 pm (CDT)

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

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Lead Author

Kaylie Burns

Paper

1:00 pm - 1:20 pm (CDT)

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

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Lead Author

Jaclyn H. Ford

Paper

1:20 pm - 1:40 pm (CDT)

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

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Lead Author

Anna Pyle

Day 2

4:20 am - 4:30 am (CDT)

Welcome

Keynote

4:30 am - 5:30 am (CDT)

The sibling subsystem in families with a child with Down syndrome: Processes and outcomes

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Speaker

Monica Cuskelly

Keynote

5:45 am - 6:45 am (CDT)

Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.

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Speaker

Kelly Burgoyne

Symposium

7:00 am - 8:00 am (CDT)

Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions

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Organizers

Vesna Stojanovik

Kelly Burgoyne

Emma Pagnamenta

Symposium

8:45 am - 9:45 am (CDT)

Social communication and caregiver-child interactions with individuals with Down syndrome

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Organizer

Susan J. Loveall

Paper

10:00 am - 10:20 am (CDT)

Examining the feasibility of audio and video caregiver-collected language measures

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Lead Author

Marianne Elmquist

Paper

10:20 am - 10:40 am (CDT)

Early Communication Development in Infants and Toddlers with Down Syndrome

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Lead Author

Daniela Fanta

Paper

10:40 am - 11:00 am (CDT)

Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism

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Lead Author

Anna Stewart

Paper

11:15 am - 11:35 am (CDT)

Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome

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Lead Author

Tamar Keren-Portnoy

Paper

11:35 am - 11:55 am (CDT)

Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention

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Lead Author

Beate Peter

Symposium

12:10 pm - 1:30 pm (CDT)

Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective

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Organizer

Elizabeth Boatwright

Day 3

3:50 am - 4:00 am (CDT)

Welcome

Symposium

4:00 am - 5:30 am (CDT)

Exploring the Mathematical Abilities of Children with Down syndrome

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Organizer

Stella Xu

Paper

5:45 am - 6:05 am (CDT)

Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome

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Lead Author

Laura Hielscher

Paper

6:05 am - 6:25 am (CDT)

Starting Points for Cultural Change

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Lead Author

Merelina Houghton

Paper

6:25 am - 6:45 am (CDT)

Co-production in research: Guidance on research with family carers of people with a learning disability

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Lead Author

Jo Griffin

Keynote

7:00 am - 8:00 am (CDT)

Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?

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Speaker

Sue Buckley

Symposium

8:40 am - 11:00 am (CDT)

Teaching children with Down syndrome to read: practitioner and international perspectives

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Organizer

Sue Buckley

Symposium

11:15 am - 12:35 pm (CDT)

Teaching children with Down syndrome to read: family perspectives

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Organizer

Sue Buckley

Paper

12:50 pm - 1:10 pm (CDT)

Literacy Development Milestones in Children with Down Syndrome

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Lead Author

Jennifer Harris

Paper

1:10 pm - 1:30 pm (CDT)

Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance

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Lead Author

Nancy Raitano Lee