Down Syndrome Research Forum 2025

Program · March 17-19

The Down Syndrome Research Forum is a regular international event where researchers, students, practitioners, and families meet to discuss current research and practice, and learn from each other.

Display times for:

4:50 am - 5:00 am (EDT)

Welcome

Keynote

5:00 am - 5:45 am (EDT)

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

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Speaker

Linda Gilmore

Paper

5:45 am - 6:05 am (EDT)

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

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Lead Author

Chris Jarrold

6:05 am - 6:20 am (EDT)

Break

Paper

6:20 am - 6:40 am (EDT)

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

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Lead Author

Susanna Stokes

Paper

6:40 am - 7:00 am (EDT)

Social Skills Acquisition in Children and Adolescents with Down Syndrome

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Lead Author

S. Onnivello

Paper

7:00 am - 7:20 am (EDT)

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

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Lead Author

Susanna Stokes

Symposium

7:35 am - 8:45 am (EDT)

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

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Organizer

Hana D’Souza

Paper

9:30 am - 9:50 am (EDT)

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

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Lead Author

Tamar Rutter

Paper

9:50 am - 10:10 am (EDT)

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

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Lead Author

Brian Skotko

Paper

10:10 am - 10:30 am (EDT)

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

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Lead Author

Shann Kyle G. Gacho

Paper

10:45 am - 11:30 am (EDT)

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

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Lead Author

Natasha Marrus

Paper

11:30 am - 12:10 pm (EDT)

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

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Lead Author

Frank Buckley

Paper

12:25 pm - 12:45 pm (EDT)

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

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Lead Author

Jessica Mattingly

Paper

12:45 pm - 1:05 pm (EDT)

Attention, working memory, and adaptive skills for adults with Down syndrome

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Lead Author

Kayla Kristensen

Paper

1:05 pm - 1:25 pm (EDT)

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

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Lead Author

Elisa Rossi

Paper

1:40 pm - 2:00 pm (EDT)

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

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Lead Author

Kaylie Burns

Paper

2:00 pm - 2:20 pm (EDT)

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

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Lead Author

Jaclyn H. Ford

Paper

2:20 pm - 2:40 pm (EDT)

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

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Lead Author

Anna Pyle

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Down Syndrome Research Forum 2025

Display times for:

Day 1

Mastery motivation from early childhood to early adulthood: Findings from a 20-year study of individuals with Down syndrome

Speaker

Cognitive, emotional, social, and sensory regulation skills among children with Down syndrome

Lead Author

Break

Developing Self-Control and Self-Regulation Skills: A 12-Week Program for Individuals with Down Syndrome

Lead Author

Social Skills Acquisition in Children and Adolescents with Down Syndrome

Lead Author

Building Independence and Developing Functional skills through Independent Community Navigation in Teens with Down Syndrome

Lead Author

Leveraging machine learning to understand and support the everyday experiences of young children with Down syndrome

Organizer

Down syndrome in maternity care: Mothers’ experiences of prenatal screening

Lead Author

Lived experiences of parents who have received a prenatal diagnosis of Down syndrome

Lead Author

Journey of compassion: experiences among caregivers of child with down syndrome in Iloilo

Lead Author

Novel Insights in Brain and Behavior Development in Down Syndrome from the Infant Brain Imaging Study (IBIS) Network

Lead Author

Tracking development at home, in therapy and at school: introducing My Child's Progress, My Clients' Progress and My Students' Progress

Lead Author

The Effects of Physical Activity on the Language and Executive Functioning of Children with Down Syndrome

Lead Author

Attention, working memory, and adaptive skills for adults with Down syndrome

Lead Author

Exploring Longitudinal Changes in Executive Functions and Adaptive Behavior in Children with Down Syndrome

Lead Author

Exploring Sleep Behaviors and Behavioral Intervention Acceptance in Down Syndrome: A Caregiver-Child Comparison

Lead Author

Role of sleep in enhancing emotional memory in teens and young adults with Down syndrome

Lead Author

Mindfulness-Based Treatment for Insomnia: Adaptations for use in Young People with Down Syndrome

Lead Author

Day 2

The sibling subsystem in families with a child with Down syndrome: Processes and outcomes

Speaker

Parent Power: The uniquely powerful position of parents in supporting language development for children with Down syndrome.

Speaker

Factors related to early language development in Down syndrome: the importance of the home learning environment and executive functions

Organizers

Social communication and caregiver-child interactions with individuals with Down syndrome

Organizer

Examining the feasibility of audio and video caregiver-collected language measures

Lead Author

Early Communication Development in Infants and Toddlers with Down Syndrome

Lead Author

Characterization of Communication Profiles of Toddlers with Down Syndrome and Autism

Lead Author

Evaluating the BabblePlay app intervention to encourage vocalising in infants with Down Syndrome

Lead Author

Babble Boot Camp for infants with Down syndrome: Pilot study of a proactive parent-led intervention

Lead Author

Cerebral Visual Impairment (CVI) and Down syndrome, a Multidisciplinary Perspective

Organizer

Day 3

Exploring the Mathematical Abilities of Children with Down syndrome

Organizer

Parental experiences of nasogastric (NG) tube feeding for young children with Down syndrome

Lead Author

Starting Points for Cultural Change

Lead Author

Co-production in research: Guidance on research with family carers of people with a learning disability

Lead Author

Teaching children with Down syndrome to read: what we know, what we do not know and what are the implications for literacy teaching and for early speech and language interventions?

Speaker

Teaching children with Down syndrome to read: practitioner and international perspectives

Organizer

Teaching children with Down syndrome to read: family perspectives

Organizer

Literacy Development Milestones in Children with Down Syndrome

Lead Author

Cognitive correlates of word decoding and listening comprehension in youth with Down syndrome: An examination of traditional pre-literacy skills and executive function task performance

Lead Author