Essays Index

18 resources found.

• Motherhood and genetic screening: a personal perspective
  Fiona Place
  According to the medical profession the direction and scope of reproductive services such as IVF and pre-natal screening are based on solid evidence; the evidence indicates these are effective and safe services. Moreover, women want them. As a consequence these services are usually presented to the wider community in a positive light with images of ‘successful’ birth outcomes showcasing the importance of their work. Unsurprisingly this has lead to women being expected to take control - from timing a pregnancy to choosing one particular pregnancy over another – they are to improve their lives and the health of their offspring. But are these developments all ‘good’ news? Is it safe to assume the push to achieve better birth outcomes and the concomitant use of prenatal testing automatically improves lives? Could it be the issues raised are causing some lives to become harder? How meaningful, for example, are tests such as amniocentesis and CVS? As the mother of a child with Down syndrome I believe it is important for myself and other women in similar situations to share their lived experience. Perhaps we can illuminate some of the more complex and troubling issues these technological advances have the capacity to create – not only for ourselves – but for all women.
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  Down Syndrome Research and Practice (Online). 2007. doi:10.3104/essays.2013
• Early Intervention in Vietnam
  Marja Hodes
  This essay describes the setting up of early intervention services in Vietnam. From the outset, there was a focus on developing staff training programmes alongside establishing model early intervention programmes to ensure that the work would be sustained at the end of the project funding and spread throughout the country. The success of this work has now led to the government of Vietnam wanting to move to the next stage and to begin to develop training for full inclusion of children with disabilities in the school system.
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  Down Syndrome Research and Practice. 2007. doi:10.3104/essays.2021
• Noises
  Sal Hamlyn
  To follow
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  Down Syndrome News and Update. 2006. doi:10.3104/essays.378
• 26th June 2006 – A Day to Remember
  Dave Thomas
  To follow
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  Down Syndrome News and Update. 2006. doi:10.3104/essays.377
• Music, music therapy, musical abilities and the role of music in the lives of children and adults with Down syndrome
  Sue Buckley
  Are we making full use of music in all its forms?
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  Down Syndrome News and Update. 2006. doi:10.3104/essays.359
• Prom Night for Charlotte
  Vikki Horner
  Prom Night for Charlotte
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  Down Syndrome News and Update. 2006. doi:10.3104/essays.373
• Evidence that we can change the profile from a study of inclusive education
  Sue Buckley, Gillian Bird and Ben Sacks
  This paper discusses the evidence that the specific developmental profile frequently described as being associated with Down syndrome - a profile of communication weaknesses relative to social and daily living skills - can be changed. It is not an inevitable outcome of having Down syndrome. Drawing on data collected to explore the outcomes of fully inclusive education for school-age children with Down syndrome, the authors identify that the profile is seen in teenagers in special education settings but is not evident for teenagers in inclusive education. They argue that this is the result of both the effects of fully inclusive education and teaching approaches which have been adapted to address the cognitive and communication weaknesses of the children from an early age.
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  Down Syndrome Research and Practice. 2006. doi:10.3104/essays.294
• The Girls’ Club
  Greg Sneath
  The Girls’ Club
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  Down Syndrome News and Update. 2006. doi:10.3104/essays.376
• Why me?
  Shelley Ducarreaux
  How post-natal depression affected family life in the early days
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.357
• Fast train .................. Slow train
  Sal Hamlyn
  Sal tells the moving story of how having a child with Down syndrome has enriched her and her husband’s lives by encouraging them to relish each moment rather than constantly looking to the next
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.356
• My dream came true: Everyone is the same human, same life
  Aya Iwamoto
  To follow
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.344
• Kirsty
  Neil Harrower
  Kirsty
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.343
• How do we support families effectively in the first year?
  Sue Buckley
  What can parents, associations and practitioners do to get early support right?
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.347
• Specificity in Down syndrome
  Sue Buckley
  Do children and adults with Down syndrome have a specific developmental profile of strengths, weaknesses and needs on which early intervention, education and healthcare should be based if they are to be effective?
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.336
• Children with additional needs
  Sue Buckley
  A major theme running through articles in this issue is the care of children with Down syndrome who have additional needs, arising from complex health problems or from having another disabling condition as well as Down syndrome
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  Down Syndrome News and Update. 2005. doi:10.3104/essays.340
• PowerPoint presentation by a young adult with Down syndrome
  Erik de Graaf and David de Graaf
  A selection from a presentation read by David in English at the Luxembourg Symposium on Inclusion, 15 March, 2003.
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  Down Syndrome News and Update. 2003. doi:10.3104/essays.205
• Meg's story
  Ann Barry
  A story in two parts: in 1994 I wrote describing the background of my sister with Down syndrome and the way in which she and I coped with her care after the death of our mother. I hoped that our experience would be useful to parents facing the prospect of their handicapped child being left without parents. The second part describes the present situation and includes our plans for the future.
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  Down Syndrome News and Update. 2002. doi:10.3104/essays.169
• The World Association Movement for Down Syndrome
  Juan Perera
  If we look back at the history of the world association movement for Down syndrome, the impression we have is that during the last decade of the 20th century the aim has been to consolidate the common strength of this independent movement in the world's developed countries, seeking public commitment and collaboration, claiming the representative nature of the collective and organising more solid and better managed structures. The families, professionals and persons with Down syndrome, working together in the associations and federations, try to adapt to the circumstances, to contribute new and specific solutions, to change social attitudes and respond efficiently to the needs of persons with Down syndrome, which is basically the only thing that should really matter to us
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  Down Syndrome Research and Practice. 1999. doi:10.3104/essays.96

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